Throughout this time right to the end of her life, the body slowly stopped functioning normally and Anne became trapped in her body but her brain was still very active and the frustration and anger, would sometimes be seen as she tried to communicate with us.
To see the deterioration of someone, anyone’s loved one with this condition is heart breaking and extremely traumatic, as the brain is attacked, co-ordination and muscular activity declines. Eventually full time care is required, solid food will be stopped at some point, as the muscles do not respond, the sufferer cannot swallow and can easily choke to death. In Anne’s case particularly during the latter stages, when she had been moved to a Care Home, her favourite food was Tiramisu, an Italian desert, easy to swallow, however she still needed to be careful watched to avoid her choking. Food, to keep her alive was subsequently passed in liquid form through a tube inserted in her stomach.